Imagine a world free of Sickle Cell and its burdens
Together We Can Find a Cure
Bobbi Engram Foundation is the fulfillment of an eight year old’s desire to help others like herself with Sickle Cell. Although Bobbi passed from Sickle Cell complications at the age of 20, her desire was to give non-sickle cell individuals a proper perspective toward those struggling with sickle anemia; what happens during a pain crisis; and how to best meet the needs of those with Sickle Cell Anemia until a cure is found.
Please click the Donate button bellow to help us accomplish Bobbi’s desire to find a cure for Sickle Cell Disease while improving the overall quality of life for individuals and their families who struggle with Sickle Cell.
“The word that comes to mind when I think about Sickle Cell being cured is relief. Just to know that my little sister would be free of all pain and able to live life normally like other eight year old girls encourages me.”
About Our Foundation
The Bobbi Engram Foundation (BEF) is a private non-profit organization dedicated to serving individuals suffering with Sickle Cell Anemia. The BEF is partnering with NIH and other medical institutions to find a cure for Sickle Cell.
The Bobbi Engram Foundation (BEF) was founded in 2008. Bobbi’s struggles with Sickle Cell and its complications as a child and young adult intensified her desire to help other families struggling with this disease. That desire led her parents, Bobby and Deanna, to create the BEF which focused on raising awareness and seeking a cure for the disease.
Although the foundation was originally named after Bobbi’s father, Bobby Engram, it was later renamed the Bobbi Engram Foundation (BEF) in August 2018 in honor of Bobbi who passed away from Sickle Cell complications at the age 20 on August 25, 2018.
The Engram family continues to share Bobbi’s love, passion, and commitment to finding a cure through the Foundation. Learn more about the Engram family and Bobbi's story in the August 2019 article from The Athletic.
Phoebe is a vibrant and caring person. She loves writing short stories, drawing, and traveling. Like Bobbi, Phoebe has Sickle Cell Disease also, but she chooses to embrace life fully and focus on what she can do and take advantage of all the opportunities available to her.
Witnessing her big sister’s struggles with Sickle Cell Anemia and questioning if this would also be her life’s journey, forced Phoebe to view life as a precious gift to be enjoyed and appreciated every minute.
Phoebe’s dreams for the future are as varied as other children her age. She looks forward to a future without Sickle Cell so that she and others like her can pursue and achieve their dreams.
To learn more about Phoebe and her story, please click on the Phoebe’s Corner link.
Bobbi inspired many through the grace and courage with which she battled Sickle Cell Anemia. From an early age, she worked to create awareness so that others knew they were not alone in their battle. Bobbi’s legacy lives on through the children’s programs she supported.
The Bobbi Engram Foundation (BEF) is a private non-profit organization dedicated to serving individuals suffering with Sickle Cell Disease. The BEF strives to provide hope, courage and opportunities to individuals affected by Sickle Cell Disease.
The Bobby Engram Foundation (BEF) was founded in 2008 and received its 501(C)(3) status the same year. While suffering with Sickle Cell complications as a child and young adult Bobbi Engram (daughter) developed a strong desire to help other families and people, especially children, afflicted with Sickle Cell Disease. That desire led her parents, Bobby and Deanna to create the BEF, which is focused on raising awareness and seeking a cure for the disease.
The foundation was renamed the Bobbi Engram Foundation in August 2018 in honor of Bobbi Engram who passed away from Sickle Cell Complications at the age of 20 on August 25, 2018.
Every Donation Counts
Please join us in our search for the cure!